Cohort Number
Cohorts¶
Cohorts are defined between 1st December year and 30th November in the subsequent year. Note, the final submission date is the second Tuesday in January after the closing date 1 YEAR ON. So if the cohort closes on 30 Nov 22, the submission date is the second Tuesday after 30/11/23, which is 9 Jan 24
Cohorts are defined as follows:
- currently recruiting cohort: this is the cohort that is currently recruiting patients
- currently submitting cohort: this is the cohort that is no longer recruiting patients but is still collecting data to complete a full year of care
- grace cohort: this cohort is also no longer recruiting patients but is still collecting data to complete a full year of care. This cohort is the one before the submitting cohort.
Time zone is not explicity supplied. Since this is a UK audit, time zone is assumed always to be UK.
Examples of cohort numbers¶
- Cohort 4: 1 December 2020 - 30 November 2021: submission 10 January 2023
- Cohort 5: 1 December 2021 - 30 November 2022: submission 9 January 2024
- Cohort 6: 1 December 2022 - 30 November 2023: submission 14 January 2025
- Cohort 7: 1 December 2023 - 30 November 2024: submission 13 January 2026
- Cohort 8: 1 December 2024 - 30 November 2025: submission 12 January 2027
Cohort-specific measures¶
This section is a policy review matrix. It focuses on which measures are intended to belong to which cohort, and which parts of the codebase still need a decision.
Measure matrix¶
| Area | Measure / field | Current cohort policy in code |
|---|---|---|
| Multiaxial diagnosis | syndrome_present |
Available in all cohorts |
| Multiaxial diagnosis | epilepsy_cause_known |
Available in all cohorts |
| Multiaxial diagnosis | epilepsy_cause_categories |
Available when cause is known, all cohorts |
| Multiaxial diagnosis | epilepsy_cause |
Deprecated legacy FK, not part of scoring |
| Multiaxial diagnosis | relevant_impairments_behavioural_educational |
Available in all cohorts |
| Multiaxial diagnosis | autistic_spectrum_disorder |
Cohort 6+ only |
| Multiaxial diagnosis | mental_health_screen |
Available in the form and currently not cohort-gated in scoring logic |
| Multiaxial diagnosis | mental_health_issue_identified |
Available in the form and currently not cohort-gated in scoring logic |
| Multiaxial diagnosis | mental_health_issues |
Conditional on mental_health_issue_identified; not cohort-gated |
| Multiaxial diagnosis | global_developmental_delay_or_learning_difficulties |
Cohort 6+ only |
| Multiaxial diagnosis | global_developmental_delay_or_learning_difficulties_severity |
Cohort 6+ only, conditional on global_developmental_delay_or_learning_difficulties |
| Investigations | genome_sequencing_requested |
Cohort 8+ only |
| Investigations | r14_test_status / r14_test_requested_date / r14_test_achieved_date |
Cohort 8+ only, conditional on genome sequencing request state |
| Investigations | r27_test_status / r27_test_requested_date / r27_test_achieved_date |
Cohort 8+ only, conditional on genome sequencing request state |
| Investigations | r59_test_status / r59_test_requested_date / r59_test_achieved_date |
Cohort 8+ only, conditional on genome sequencing request state |
| Management | has_an_aed_been_given |
Available in all cohorts |
| Management | has_rescue_medication_been_prescribed |
Available in all cohorts |
| Management | Care planning fields (individualised_care_plan_*) |
Available in all cohorts, no cohort gate in code |
| Medication risk | has_a_valproate_annual_risk_acknowledgement_form_been_completed |
Cohort 6: valproate in females aged 12+; Cohort 7+: valproate, plus topiramate in females aged 12+ |
| Medication risk | is_a_pregnancy_prevention_programme_needed |
Cohort 7+ eligibility only; tied to valproate/topiramate rules |
| Medication risk | is_a_pregnancy_prevention_programme_in_place |
Cohort 7+ and only when PPP is indicated |
Interpretation¶
- The codebase is already cohort-gated for genome sequencing (cohort 8+), KPI 8 medication/reproduction risk (cohort 6/7+), and the three neurodevelopmental multiaxial diagnosis fields (cohort 6+).
- The remaining multiaxial diagnosis mental health fields (
mental_health_screen,mental_health_issue_identified,mental_health_issues) are still present in the form and scoring constants but are not cohort-gated everywhere. That is the main policy gap to resolve. - Care planning is currently available to all cohorts; if that is not intended, it needs an explicit policy decision before changing the implementation.